Dads turn on the BLOG today. Mum is sleeping beside me after a very long and hard day.
The poor grammar and spelling is also another give away!
Plan of action was to spend sometime with Lucas today. Unfortunately, we had a call from the hospital asking us to come in (Grandma & Grandad to the rescue- again!).
The Surgeons had a look at the exomphalos and found that the opening of the examphalos was healing itself by closing in, but with contents still out This was not good news as it was beginning to restrict the blood flow to the contents (namely the liver). The surgeons had no choice but too operate on Theo this evening. The initial concern was that they would need to remove the natural membrane which was always a last resort due to risk of infection. Nic & I headed to the hospital to sign the necessary consent form to allow them to carry out the procedure.
Theo was operated on late tonight. The surgeons had enlarged the opening by cutting above and below the examphalos opening, as far as they could. Usually they would cut across the body, but found Theos muscles were too well developed, so didn't want to damage them. A silo (bit like a condom) was then placed over the exposed bits, and stitched to Theos body. The idea is that with a larger opening, gravity, a little manipulating, and the healing powers of the body, should allow everything to fall back into place, whilst in a protective wrapper. This procedure was carried out successfully.
Tonight was the first time the surgeons have had the opportunity to examine the examphalos content in detail. Unfortunately the liver is very big and there is no way they can get it back inside Theo currently. This now causes significant problems, as the liver cannot sit outside the body.
I'm just had writers block for 10mins, as I really dont know how to best explain the rest. Nic & I have remained positive throughout the pregnancy and birth, and WILL continue to do so, however unless the Liver problem can be fixed then Theo will not survive.
We have been at Theo's bedside this evening. The surgeon suggested we get a good nights sleep as Theo was heavily drugged up and wouldn't respond. However Mum walked in the room, said a few words, and his eyes were wide open. He started to wriggle about a lot too. They gave him some more things to help him rest. We are so proud of our strong wee boy. The nurses and other staff have really taken to him, and are always paying a visit to check on him.
I cannot describe how difficult it is too see him in his condition ( maybe its because English was never my strong point!) however, I do want to take the opportunity to say how proud I am of my wife, she has been so strong throughout The pregnancy, birth, and now our time in Hospital. For a second time she sees her newborn child though the window of an incubator, only this time, there is no opportunity for hugs & cuddles for a very long time. She is made of some really strong stuff which I am confident has been passed onto Theo.
The poor grammar and spelling is also another give away!
Plan of action was to spend sometime with Lucas today. Unfortunately, we had a call from the hospital asking us to come in (Grandma & Grandad to the rescue- again!).
The Surgeons had a look at the exomphalos and found that the opening of the examphalos was healing itself by closing in, but with contents still out This was not good news as it was beginning to restrict the blood flow to the contents (namely the liver). The surgeons had no choice but too operate on Theo this evening. The initial concern was that they would need to remove the natural membrane which was always a last resort due to risk of infection. Nic & I headed to the hospital to sign the necessary consent form to allow them to carry out the procedure.
Theo was operated on late tonight. The surgeons had enlarged the opening by cutting above and below the examphalos opening, as far as they could. Usually they would cut across the body, but found Theos muscles were too well developed, so didn't want to damage them. A silo (bit like a condom) was then placed over the exposed bits, and stitched to Theos body. The idea is that with a larger opening, gravity, a little manipulating, and the healing powers of the body, should allow everything to fall back into place, whilst in a protective wrapper. This procedure was carried out successfully.
Tonight was the first time the surgeons have had the opportunity to examine the examphalos content in detail. Unfortunately the liver is very big and there is no way they can get it back inside Theo currently. This now causes significant problems, as the liver cannot sit outside the body.
I'm just had writers block for 10mins, as I really dont know how to best explain the rest. Nic & I have remained positive throughout the pregnancy and birth, and WILL continue to do so, however unless the Liver problem can be fixed then Theo will not survive.
We have been at Theo's bedside this evening. The surgeon suggested we get a good nights sleep as Theo was heavily drugged up and wouldn't respond. However Mum walked in the room, said a few words, and his eyes were wide open. He started to wriggle about a lot too. They gave him some more things to help him rest. We are so proud of our strong wee boy. The nurses and other staff have really taken to him, and are always paying a visit to check on him.
I cannot describe how difficult it is too see him in his condition ( maybe its because English was never my strong point!) however, I do want to take the opportunity to say how proud I am of my wife, she has been so strong throughout The pregnancy, birth, and now our time in Hospital. For a second time she sees her newborn child though the window of an incubator, only this time, there is no opportunity for hugs & cuddles for a very long time. She is made of some really strong stuff which I am confident has been passed onto Theo.
Nic, Gary. Hang in there, you're both doing amazing to cope with all this AND keeping us all updated too. Theo is in our thoughts all the time as are you both. We are willing our little soldier to get better, just wish time would speed up and all this waiting was over. Love you lots, Ros, Bry, Anya & Christopher xxxx
ReplyDeleteHi Nic and Gary, wee Theo is absolutely gorgeous, you must be so proud. Hope he recovers well from his op and Lucas can go back and blether to him!! As above, thanks for keeping us all updated, it's too much for you, but i'm pretty sure it helps to write some stuff down here, eh? Love to you 2, Lucas and Theo, (strong man, from Al, Colin, Alyx, Fraser, Helen, Peter and all our family xxxxx
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