Sunday 18 January 2009

17.1.09


Dad here again, Mum is currently milking..sorry "expressing". Not an enjoyable job, but Theo will appreciate all the nutrients when he starts feeding again. Today has been a better day. Mum and Dad feeling a bit more positive. Yesterday was definitely the most difficult day we have faced. I thought I was doing OK until I was asked to sign the consent form for surgery, and realised I had lost the ability to pick up a pen, far less sign my name..I Knew at this stage the Surgeon, Mr MacKinlay would not be asking me to assist in theatre!

Theo is still recovering today from his big op yesterday. He's heavily sedated, but the Consultants are happy with his condition. They have stopped introducing the diuretic, which was helping to reduce swelling in the skin, so he looks a little swollen, and bruised today, which is not easy on the eye, but it was explained that out of the problems associated, this carries the least amount of risk. The next 72 hrs will still be critical for Theo as he needs to recover from surgery, fight any potential infections, and just get better.

We met with one of the surgeons who had been able to manipulate the sack and push a few bits back inside. They can only do this very gradually as its does put some stress on Theo who is still only very small, also the gut doesn't agree with being moved around so they have stopped his milk feeds, but will restart when things have settled. Today is still only a very small hurdle as the risk of infection at any time is always a massive concern. But we should be positive on today's outcomes.

Thanks again to everyone for their support. I will not name names for fear of missing people out. Please keep the messages coming, Nic isn't often on e-mail but has her phone all the times (no change there!) and always appreciates a txt when she gets out of the hospital. It is really difficult to reply on an individual basis, but please be assured your messages of encouragement really really do help.

5 comments:

  1. As you can see thinking about you all at all hours of the day and night. Good to read that you guys are staying so positive although I wouldn't have expected anything less. Theo deifinitely appears to be a fighter (like his mummy). I just can't say this often enough but anything I can do to help let me know. I love you both and am sending so many positive thoughts my brain is getting scrambled!
    Em xx

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  2. Guys, we were thinking about the little fella all yesterday, so I'm so pleased to have logged on to such great news! Gary, your english has improved dramatically over night, I'm starting to think you've had some surgery too! See you guys soon.
    J & K & E

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  3. Hi guys, we were on the GEEPS website until late last night reading all the positive stories, and thinking of the day that there's a photo of Theo up there! Sending you all so much love and good vibes.
    Jessica, Neil, Zella and Daph

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  4. We wish you all the very best. As you know, having been through all we have, Ross and I are incredibly mindful of what you are experiencing emotionally right now. So sending lots of love and prayers your way. All the very best, -Shannon & Ross Edwards (mum and dad to angel Zoe)

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  5. Thinking of you all and sending as many positive vibes as we can. These exomphalos babies are little fighters. Look after each other - I remember how tired mentally and physically we used to get when Summer was in hospital - Theo needs you to stay as strong as possible. Big Hug for Lucas.
    Em, Matt & Summer xxx

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